Late stage Kidney failure at 28.
this post was submitted on 18 May 2025
67 points (97.2% liked)
Asklemmy
48121 readers
642 users here now
A loosely moderated place to ask open-ended questions
Search asklemmy π
If your post meets the following criteria, it's welcome here!
- Open-ended question
- Not offensive: at this point, we do not have the bandwidth to moderate overtly political discussions. Assume best intent and be excellent to each other.
- Not regarding using or support for Lemmy: context, see the list of support communities and tools for finding communities below
- Not ad nauseam inducing: please make sure it is a question that would be new to most members
- An actual topic of discussion
Looking for support?
Looking for a community?
- Lemmyverse: community search
- sub.rehab: maps old subreddits to fediverse options, marks official as such
- !lemmy411@lemmy.ca: a community for finding communities
~Icon~ ~by~ ~@Double_A@discuss.tchncs.de~
founded 6 years ago
MODERATORS
No, not once. I've got ablot of issues due to nobody giving a shit when I was young making the tiniest effort to get shit diagnosed and properly taken care of. On top it was out of pure naivety due to the belief that if youre not diagbosed its not true and partly science denial.
Life
I'm on the autism spectrum, with very low support needs. My health care provider has that in my medical records. Now I'm worried that I'm going to disappear into some camp, and my wife will never know what happened.
The psychologist who did like a shortened test on me actually recommended against going further and also getting diagnosed by a psychiatrist if I don't want any official support. Just not worth a lifetime of discrimination within the medical system. I'm noticing it happening with my ADHD diagnosis. That one's worth the discrimination though, since the treatment is a life saver (potentially literally).
I've never been happier not to have an official diagnosis. My wife and I are considering our options.
Ireland? New Zealand? We both have semi in demand skills. I'm a tradesman and she's a social worker. Realistically we're stuck here but looking at what we might be able to do
load more comments
(31 replies)
I am really glad and very priveleged to have been diagnosed with ADHD. However, I worry that my official diagnoses might put me in danger soon
In the Netherlands you can remove your ADHD diagnosis (at least when moving from child to adult care, if I recall correctly)
Had a hard time figuring out life in my early 20's. Sought help, and got a mental health diagnosis and some meds that I took for a while. 20 years later it's clear that it was either a misdiagnosis of simple existential angst, or I figured shit out in the meantime. Paying 40% more for life insurance and need reports from the doctor I haven't seen in 18 years each time I have to renew security clearance.
I know my wife wishes she had never been officially diagnosed with depression, as it precludes her from some jobs she wanted to apply for. How true this is is reality, I donβt know.
Not sure where you're located, but at least in the USA it's definitely illegal for an employer to discriminate against a medical diagnosis like that. They aren't even allowed to ask you private medical questions during the hiring process.
It prevents you from jobs like airline pilots, the rationale being that placing someone potentially suicidal in control of a plane full of people isn't a good idea. The rationale doesn't really make total sense but you can see why they'd think that way.
except that airline pilots end up depressed and untreated instead of just not depressed.
But depression isn't a thing normal people experience! It's only the mentally ill and we don't want them at the controls.. /s
Oh yeah definitely, that's a major problem that's specifically created by this policy.
load more comments
(2 replies)
It's illegal unless there's a bonafide occupational qualification that your disability prevents you from performing. Like you couldn't apply for a job as a furniture mover if you're a quadriplegic and cry discrimination when they don't select you. And the employer can ask things like "this job requires that you lift heavy objects of up to 600lbs with the assistance of another person and a back brace. Do you have any medical or other reason you could not perform these duties?".
Now if that weren't a real occupational qualification, that'd be discriminatory. Like if they said you had to be a man for that moving job - there's no reason you have to be a man, you just have to be able to move 600lb things.
load more comments
(1 replies)
I wish I straight up just didn't have the things I was diagnosed with. The diagnosis themselves haven't changed anything other than now I at least know I am not a piece of shit on purpose.
I get this. All the time.
Is it the depression or is it just me? Am I just a piece of shit?
I'm really feeling this, man.
Celiac is a real pain in the ass and makes me sound unhinged at a restaurant.
Are you severe? Any complications as a result?
I'm not sure if I'm severe - I get a three-day migraine that is not unresponsive to medication if I eat gluten. π€· I was vitamin deficient and had damage to my intestines, but that's fixed now. I have a lot of other weird food stuff going on, but am still unclear if it is even related. The biggest complication is not being able to eat out easily. And I'm that person at parties that I brings their own food.
I'm so used to not eating out, eating at family gatherings. Cooking everything from scratch with salt only. Low fodmap, low sugar, low fat. I have SIBO. Liver issues, kidney failure, migraines, basically systemic issues. Can't tolerate anything hardly at all. Top 9 allergen free. I feel like a basket case of issues with mine. So I was curious about you.
I'm just so tired of checking every single ingredient list.
Also tired of terms at restaurants like "Gluten Aware", "Gluten Conscious", etc. Then you find out everything is still going in the same fryer π«€
I really appreciate places like Subway and Taco Bell that just tell you up front they probably have cross-contamination on everything. Most places the workers don't even know what gluten is. When I explain, they think I should just say I don't want bread.
Subway is way off my list. They cut the bread over the meat. You can watch the crumbs fly right in.
Also tired of terms at restaurants like "Gluten Aware", "Gluten Conscious", etc. Then you find out everything is still going in the same fryer
At least they're aware of it.
load more comments
(1 replies)
load more comments
(2 replies)
I'm 50/50. On one hand it's interesting and good to know about yourself and your issues but it is a double-ended sword. I was diagnosed with ASPD a little while back among other things and while I'm glad I understand the root for a lot of my problematic traits I now also have a piece of paper that makes me look bad if I have to go to court.
Iβm not diagnosed and Iβm seriously considering keeping it that way. My nephew is so hoping the political situation in the UK doesnβt go that way.
I wish I hadnβt been diagnosed with cystic fibrosis but mostly I wish I didnβt have it
view more: next βΊ