this post was submitted on 19 Nov 2023
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Just had my 2nd lung collapse almost a year after the first . The doctors are recommending me to get a VATS surgery but I'm not sure what to expect post surgery. I have an appointment tomorrow to finalize my decision and I could ask them but I also want to know the experiences of people who had it done.

Do you regret doing it?

Are there any persistent pain even years after the surgery?

Were you able to return to normal life after, like swimming, lifting weights etc?

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[–] monsieur_hackerman@programming.dev 12 points 1 year ago (1 children)

My lungs collapsed 6 times near the end of highschool, i am fairly tall and was on the skinnier side, and tall skinny lungs are prone to do that apparently.

They performed surgeries to pop the blebs (blistery things on the lungs i guess) on my lungs and put some powder between my lungs and the rib cage to "glue" them up during the bleb healing. No idea if it was video assisted though.

Haven't had any serious issue since then. I was training for a marathon before hurting my calf from not stretching, and then i joined a competitive rowing team, so id say no barriers from that standpoint.

For me at least, it seems after an especially violent puking session, my lungs can lightly collapse, or at least there's a correlation there. This only happened after a night of fairly stiff drinking so i don't do that anymore.

The surgeries were about 14 years ago, and i can't imagine how many chest tubes i would have had if i didn't get them. For me it was great, i hope they help you out similarly.

[–] Crackhappy@lemmy.world 4 points 1 year ago (2 children)

I have pretty much the exact same experience, but mine was 30 years ago. If I do something extreme I can still get a partial collapse, but they always heal and aren't too bad. The surgery is, honestly, the worst thing ive ever experienced (this includes later cancer surgeries) but was worth it in the end.

[–] Voltage@slrpnk.net 4 points 1 year ago

Man I hope they found better ways to do the surgery in the last 30 years.

[–] Voltage@slrpnk.net 2 points 1 year ago (1 children)

this was the worst thing i have ever gone through in my life yet. I still have the tube in me

Yeah, now is definitely going to suck, long term it should be better though. Not getting admitted multiple times in a year is nice.

Avoid abusing the morphine drip, eat the shitty food for a few days, and you're in the clear more or less. Hopefully you have enough visitors coming by to keep you entertained. Either way I'm rooting for you!

[–] Nihility@lemmy.world 7 points 1 year ago

I’ve had VATS twice now. One in 2019 and one in 2021. Both were for a pleurodesis as the pneumothoraxes I experienced refused to self resolve. Zero regrets on both, but I didn’t have a choice, really.

Only pain I was left with is slight discomfort in my left upper chest region if I inhale too deeply while reaching up for things, and some nerve damage that results in a localized burning numbness that extends slightly into my armpit if I press above my right breast. Nerve damage came from the second.

I did have nerve damage from the first that left me numb in a candy bar shape right under my ribs on my left side for a year or so. The numb burning above my breast comes and goes in severity but the severe end has been weakened more and more with time.

I was able to return to normal life. Exercise isn’t an issue as long as I avoid over extending my arms upward. Basically no straining to reach stuff on my left side. I haven’t been swimming in many years, but I can imagine large, powerful strokes could cause me some discomfort.

Life is back to normal for me now, but I do have some anxiety that crops up with chest pains. The worst part of it all in my experience was the chest tubes.

Hope this helps.

[–] agressivelyPassive@feddit.de 6 points 1 year ago (1 children)

Why is your thorax so leaky in the first place? I thought pneumothorax only happens after relatively severe injuries.

[–] Voltage@slrpnk.net 4 points 1 year ago (1 children)

I have no idea. I was diagnosed with primary spontaneous pneumothorax

[–] agressivelyPassive@feddit.de 5 points 1 year ago (1 children)

I'm not a doctor at all, so I'll assume, you have a tiny-caliber sniper following you.

[–] Crackhappy@lemmy.world 3 points 1 year ago

I have a number of small scars from my surgery for this and when people would ask me how I got my scars id whisper "Snipers man, snipers"

[–] habbin@lemmy.world 6 points 1 year ago

I'm fifteen years post surgery on both sides. Had blebs and bullae removed and a mechanical VATS (no talc) a few weeks apart.

There were complications with one surgery and I ended up having an unplanned thoracotomy which took a while longer to heal, but beyond a very cool scar, I have had no real noticeable health changes and am very glad I had it done.

[–] LeUgh@lemmy.world 4 points 1 year ago (1 children)

I'm not sure what VATS involves but after my 2nd one they removed a bit of the top of my collapsed lung. After everything healed, I it didn't feel any different than before. So no pain or any restrictions even when doing pretty involved sports.

[–] Nihility@lemmy.world 2 points 1 year ago

Same thing they did to me for my first one. Took out roughly a quarter of my left lung and did a pleurodesis cause it was a really bad hole from what I understand.