Excellent Reads

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Are you tired of clickbait and the current state of journalism? This community is meant to remind you that excellent journalism still happens. While not sticking to a specific topic, the focus will be on high-quality articles and discussion around their topics.

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Killed by ME, the terrible illness that divides doctors (archive.ph)

submitted 3 months ago by mecfs@lemmy.world to c/longreads@sh.itjust.works

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[–] cleanandsunny 13 points 3 months ago

What a tragedy. I hope they push out national changes so her death wasn’t a complete waste. Refusing a feeding tube is bananas.

Here in the US, the discourse around ME/CFS is changing significantly now that doctors are constantly encountering long COVID and sequelae of other viral illnesses. (Another great example of this phenomenon is the sequelae like eye and joint problems among Ebola survivors, which didn’t exist as a patient cohort until 2015.) It’s unfortunate that so many people have long COVID, but the volume of patients is definitely shaking up how doctors are thinking about “mystery illnesses.” When millions of people are following a pattern, and the sample sizes are big enough to prove things, things change. I hope that MS/CFS sufferers benefit from all of this new research and training.