this post was submitted on 31 Jul 2023
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Your difficulties are real, valid, and not relative to any other person's. It's okay to have them and discuss them.
Keep watching your own brain when you can; you cannot be successful every time but you improve your brain hygiene a little bit each time you do. Sometimes you'll have to let it happen for bit of time while you regain enough energy to stop catastrophising and that's okay too. The exhaustion you get from stopping it just means you're doing good work.
So I have phenylketonuria, and a big part of this is being in tune with my brain and my mental/emotional/physical well-being as to try and gauge when my phenylalanine levels are high.
Since I’ve had my phenylalanine levels so low, I was able to correctly find out my levels were high.
As to catastrophising, unfortunately that is a symptom of high phe levels. I’ve been working on lowering my phe levels, and today was the first day I didn’t feel any anxiety or catastrophe despite starting something 24h support at work today for a week.