this post was submitted on 23 Dec 2023
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No Stupid Questions

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Seeing famous actors e.g. Robin Williams, and Bruce Willis suffering from dementia made me wonder in later stages do the people still aware of death? We all know death because we know the process we learn from or it's just that we instinctively aware of it?

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[–] kromem@lemmy.world 32 points 11 months ago (1 children)

Analyses of focus-group discussions at four nursing homes showed that dying was silent and silenced, emotions were put into the background and death was talked about after a person’s death. The staff did not talk about death neither with each other nor with the residents (100). This seems unfortunate as several residents have revealed that they were aware of the fact that they soon would die. One person emphasized that she was waiting to go to her real heavenly home. Another resident said that she was only living at the ward temporarily until she would meet her deceased spouse again and another one said that she wanted to listen to gospels while dying. Some did not speak about death and dying but reasoned about their funeral (60). At the last stages of life persons with advanced dementia often experience eating difficulties, especially swallowing problems (84–85). Several qualitative studies have reported that persons with advanced dementia at the end of life often exhibit aversive refuse-like eating behavior (101). There have been discussions about whether tube-feeding or comfort feeding should be used (102–103). The American Geriatrics Society (96) has recommended comfort feeding.

So apparently yes, even in the later stages there's still awareness and in the latest stage the refusal to eat may be tied to an awareness of its relationship to death and the choice shouldn't be taken away from them.

(Though really, starving to death sounds pretty terrible and like there might be better options for a more evolved society.)

[–] Brunbrun6766@lemmy.world 24 points 11 months ago* (last edited 11 months ago)

like there might be better options for a more evolved society.)

Like letting people go out on their own accord through a right to death. I hope that becomes a thing by the time I'm old, I don't want to just waste away and be a burden on my family