Hey y’all!
I had a post recently about abdominal pain and might’ve found the answer.
I received an email from Evinature stating that some folks have a “delayed allergic reaction to CurQD.” It went on to say, “If you experience a new abdominal pain, especially in the next six weeks that is distinct from any discomfort you have felt previously… Stop taking CurQD.”
This lines up with what I felt. About 3 weeks into taking it I experienced severe abdominal pain that almost sent me to the hospital. But I didn’t stop taking it because I’d been taking it for a few weeks without any issue and my UC symptoms had improved: no blood, no mucus, solid stools…
I emailed their clinical team and I’ve also sent a note to my GI PA. I inquired if this is a temporary thing the body acclimates to or not. The pain I’ve been having has been ebbing.
I’m honestly so discouraged. I don’t trust the GI team anymore because any time I have an unexplained symptom they just say, “well it’s probably IBS.” It’s not fucking IBS. I had so much hope this was working. I’m so confused about how my body can have a “delayed allergic reaction” and also still be working. I just… idk anymore.
Update:
Evinature Support got back to me quickly (faster than the actual doctor), and is sending a complimentary bottle of Cura.
The CurQD product contains two key components: Qing Dai and Curcumin. The Qing Dai is the supplement some folks have reacted negatively to. Cura only contains Curcumin, which is the anti-inflammatory compound in turmeric/ginger and is not something my body is going to freak out from.
They’ve advised I stop CurQD for 2 weeks, use the Cura to make sure I don’t backslide, or backslide very little, and then we’ll see about trying again.
At least there’s still some hope.