this post was submitted on 17 Jun 2024
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This is what childhood dementia does (youtu.be)
submitted 5 months ago by Diabolo96@lemmy.dbzer0.com to c/videos@lemmy.world
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Never heard of childhood dementia before, and apparently many people were like me before watching the video, so I am spreading awareness.

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[โ€“] un_aristocrate@jlai.lu 13 points 5 months ago (1 children)

I have never heard of childhood dementia and a quick Google search seems to point only on this website and other sites with exact same wording.

The numbers they give seem impressively high for a disorder that is barely documented on the internet.

The symptoms are basically normal children behavior.

This looks like a scam design to scare parents into buying something.

It might look like this by accident but I would do a lot more research if I were to donate or take their advice.

[โ€“] Diabolo96@lemmy.dbzer0.com 3 points 5 months ago

Yeah, I did some research and it's really weird. The majority of sites that talk about it are Australian and it's barely, if at all acknowledged anywhere else in the world. I found some sites that seems legit:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3943077/

https://www.adelaide.edu.au/newsroom/news/list/2023/09/18/devastating-causes-of-childhood-dementia-revealed

https://www.alzint.org/news-events/news/shining-a-light-on-childhood-dementia/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10486052/

https://www.dzne.de/en/news/background/childhood-dementia/

https://rareportal.org.au/rare-disease/childhood-dementia-disorders/

https://rarediseases.org/organizations/childhood-dementia-initiative/

I think that maybe it wasn't recognized before due to how rare and weird it is, like ptsd was, but I can't say for sure if it's not a scam.